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Article Retrospective Evaluation of Childhood Central Nervous System Tumors Followed in a Pediatric Hematology Oncology Center: a Single Center Experience(Akad Doktorlar Yayinevi, 2024) Erdem, Arzu Yazal; Emır, Suna; Özyörük, Derya; Genç, Aslı; Yazal Erdem, ArzuCentral nervous system (CNS) tumors are one of the main causes of cancer-related deaths in childhood. Although approximately 60% of all patients are alive 5 years after diagnosis, a sequela due to the disease and treatments are common. In this study, we aimed to evaluate the demographic, clinical characteristics, and outcomes of the childhood CNS tumors in our center. A total of 141 patients between 0-18 years who were followed up and completed their treatment in our pediatric oncology center were included. The files were reviewed retrospectively. The median age of patients was 7 years (range 1 month-17.6 years). The male/female ratio was 1.1: 1. The most common presenting symptom was headache. The median time from the first symptom to diagnosis was 1.4 months. Medulloblastoma was the most common diagnosis (n= 28, 19.9%), followed by pilocytic astrocytoma (18.4%, n= 26) respectively. Out of 141 patients, a sequela was seen in 55 (39%) patients. The relationship between high-dose radiotherapy and the development of short stature was statistically significant (p= 0.009). The patients with metastatic disease were likely to have lower survival rates than nonmetastatic disease (p= 0.001). The presence of metastasis increased the death status 6.482 times (OR: 6,482, p= 0.001). The overall 5-year survival rate of all patients was found 80%. There was an association between the histopathological subtypes and overall survival rates (p= 0.001). In the multivariate analysis, metastasis was the most important factor in survival. According to Cox regression analysis, the two most important factors affecting overall survival were the histopathological subtype and the presence of metastasis.Article Citation - WoS: 3Citation - Scopus: 3Validity and Reliability of Turkish Version the Family Inventory of Needs-Pediatric Ii: an Inventory To Identify Care Needs of Parents of Children With Cancer(Kare Publ, 2019) Boztepe, Handan; Ay, Ayşe; Monterosso, Leanne; Ayşe, A.Y.OBJECTIVEThis study was conducted to translate and adapt the Family Inventory of Needs-Pediatric II (FIN-PEDII) into the Turkish language and investigate its validity and reliability for parents of children with cancer.METHODSA self-administered questionnaire and Family Inventory of Needs-Pediatric II was completed by 180parents whose children (0-18 years old) were diagnosed with leukemia, solid tumors, and central nervous system tumors. FIN-PED II was translated into Turkish and then back-translated and then evaluated by three experts for face validity. For construct validity, exploratory factor analysis was applied andfor reliability, internal consistency analysis was employed.RESULTSAs a result of exploratory factor analysis, it was observed that percentages of explaining total variancewere 74.787%, 68.649%, and 72.746% for sections of the importance of care needs, the need fulfilment,and the need for further information, respectively. As a result of Cronbach’s Alpha reliability analysis,the reliabilities of the sections on the importance of care needs, need fulfilment, and the need for furtherinformation for FIN-PED II was 0.814, 0.906, and 0.915.CONCLUSIONAlthough the Turkish version of FIN-PED II needs further psychometric testing, it is an effective, validand reliable tool to find out the care needs of parents of children with cancer.Article Factors Affecting the Burden and Quality of Life of Caregivers For\rgynecological Cancer Patients(AVES, 2022) Yaşar, Beril Nisa; Terzioğlu, FüsunObjective: The aim of this study is to evaluate the care burden and quality of life of caregivers of patients with gynecologic cancer.\rMaterial and Methods: This descriptive study was conducted with 251 individuals who provided care to patients with gynecologic cancer in gynecologic oncology\rservices of a university hospital and a state oncology hospital. The data were collected by a semi-structured questionnaire form, Caregiver Burden Inventory (CBI),\rand Quality of Life Family Version.\rResults: The mean age of the participants was 39.76 ± 14.20; 79.3% of them were female, 65.3% were married, 28.7% were high school graduates, 57.4% were\remployed and 56.2% were unemployed before starting care, 91.2% had health insurance, 58.6% perceived their income as moderate, and 57% had relatives of the\rpatient receiving care. Care burden was statistically significant in terms of gender, marital status, educational level, and degree of affinity with the patient (P < .005).\rThe correlation between caregivers’ quality of life, gender, health insurance, income status, and the degree of affinity with the patient was statistically significant\r(P < .005).\rConclusion: As a result of this study, it was determined that some socio-demographic characteristics of the caregivers of patients with gynecologic cancer affected\rthe care burden and quality of life.
