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  • Article
    Barriers to Adherence After A Self-Management Lymphedema Education Program Among Women with Breast Cancer-Related Lymphedema
    (Lippincott Williams and Wilkins, 2026) Uçar, G.C.; Kapucu, S.; Arıkan Dönmez, A.A.; Ozdemir, O.; Dönmez, Ayşe A.
    Objectives: – Lymphedema associated with breast cancer is a chronic condition that negatively affects women’s physical functioning, psychosocial well-being, and quality of life. Although self-management education is a fundamental component of lymphedema care, many women struggle to maintain recommended practices in daily life over time. To explore how women with breast cancer-related lymphedema integrate self-management education into daily life over time and to identify barriers to sustained adherence 1 year or more after completing a self-management lymphedema education program (SMLEP). Methods: – A descriptive phenomenological qualitative design was used. In-depth, semistructured interviews were conducted with 17 women diagnosed with breast cancer-related lymphedema. Data were analyzed using qualitative content analysis. Results: – Two overarching themes were identified: problems caused by lymphedema and barriers to self-management. Problems included limitations in activities of daily living, pain, restricted social participation, and body image disturbance. Barriers included economic difficulties, decreased belief in treatment effectiveness, boredom and forgetfulness, lack of family support, absence of monitoring mechanisms, use of the dominant arm, and symptom regression. Conclusions: – Women with breast cancer-related lymphedema face interconnected physical, emotional, and contextual challenges that limit long-term self-management adherence beyond knowledge deficits alone. © 2026
  • Article
    Experiences of Parents Who Have Children With Disabilities: A Qualitative Study From Türkiye During Covid-19
    (Lippincott Williams and Wilkins, 2025) Acar, S.; Er, D.M.; Volk, K.T.; Spence, C.M.
    This study aimed to understand the experiences of parents who have young children with disabilities in Türkiye during COVID-19. We conducted a qualitative analysis of semistructured virtual interviews with eight parents. We used a collective within-case and across-case approach to analyze and interpret the interviews. Parents noted difficulties with the EI/ECSE programs and the need for individualized and functional services for their children. Furthermore, parents reported the need for high-quality, inclusive early childhood programs and the importance of well-trained educators. Parents also expressed interest in learning more about how to support their child's development and learning. Results may inform research, policy, and practice initiatives for children with disabilities and their families. The findings highlight the importance of including parent voices in the continued capacity-building efforts of EI/ECSE systems. Copyright © 2025 Wolters Kluwer Health, Inc. All rights reserved.
  • Article
    Citation - Scopus: 2
    Clinical and Demographic Characteristics of Cutaneous Mastocytosis in Childhood: Single-Center Experience
    (Lippincott Williams and Wilkins, 2022) Erdem,A.Y.; Özyörük,D.; Emir,S.; Çakmakçı,S.; Ceylan,G.G.; Toyran,M.; Mısırlıoğlu,E.D.
    Introduction: Mastocytosis is a rare and heterogenous disease, and in children it is generally limited to the skin and tends to regress spontaneously in adolescence. Aim: In this study, demographic, clinical, and laboratory characteristics of pediatric patients with mastocytosis, and also coexisting diseases were investigated. Results: A total of 61 pediatric patients were included in the study. The male-to-female ratio was 2.2, the median age was 2 years (range, 0.25 to 19 y), and the median follow-up period was 2.0 years (range, 0.25 to 19 y). Types of clinical presentation at diagnosis consisted of mainly urticaria pigmentosa (45.9%). Seven patients were further investigated with suspicion of systemic mastocytosis, they were followed up, median of 9 years (range, 2.5 to 16 y), and none of them developed systemic disease. Coexisting allergic diseases were recorded in total 5 patients (8.2%). Three patients had immunoglobulin A deficiency, 1 patient had elevated immunoglobulin E level. A patient developed mature B-cell lymphoma with a heterozygous mutation in c-KIT exon 11. Discussion: Cutaneous mastocytosis in children may present as a complex disease with different clinical signs and symptoms. Standardized clinical criteria and guidelines for the follow-up of children with mastocytosis are required. Copyright © 2021 Wolters Kluwer Health, Inc. All rights reserved.