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Article Experiences of Parents Who Have Children With Disabilities: A Qualitative Study From Türkiye During Covid-19(Lippincott Williams and Wilkins, 2025) Acar, S.; Er, D.M.; Volk, K.T.; Spence, C.M.This study aimed to understand the experiences of parents who have young children with disabilities in Türkiye during COVID-19. We conducted a qualitative analysis of semistructured virtual interviews with eight parents. We used a collective within-case and across-case approach to analyze and interpret the interviews. Parents noted difficulties with the EI/ECSE programs and the need for individualized and functional services for their children. Furthermore, parents reported the need for high-quality, inclusive early childhood programs and the importance of well-trained educators. Parents also expressed interest in learning more about how to support their child's development and learning. Results may inform research, policy, and practice initiatives for children with disabilities and their families. The findings highlight the importance of including parent voices in the continued capacity-building efforts of EI/ECSE systems. Copyright © 2025 Wolters Kluwer Health, Inc. All rights reserved.Article Citation - WoS: 1Citation - Scopus: 1The Mediating Role of Life Satisfaction in the Effect of Caregiving Burden on Mental Well-Being in Parents of Children Diagnosed With Cleft Lip/Palate(Elsevier Science inc, 2024) Ozbay, Sevil Cinar; Boztepe, Handan; Gok, Burcu; Ozgur, FigenPurpose: This study aimed to examine the effect of caregiving burden on the mental well-being of parents of children with cleft lip/palate, with life satisfaction as a mediator. Design and methods: This descriptive, cross-sectional study was conducted with a sample of 347 parents of children with cleft lip/palate. Data were collected through face-to-face interviews with the parents between March 18 and September 4, 2023. The data collection tools included a sociodemographic data form, the Zarit Burden Interview, the Warwick-Edinburgh Mental Well-Being Scale, and the Satisfaction with Life Scale. Results: It was found that parents with a higher caregiving burden had lower levels of life satisfaction. Additionally, parents with higher life satisfaction reported better mental well-being. The findings indicated that as the caregiving burden increased, the mental well-being of the parents decreased. The results suggest that life satisfaction mitigates the negative impact of caregiving burden on mental well-being. Conclusion: These findings suggest that life satisfaction plays a significant mediating role in maintaining and supporting parents' mental health. Parents with higher life satisfaction appear to cope better with the challenges posed by caregiving burden, which in turn helps them maintain better mental well-being. Practice implications: The findings show that as the caregiving burden increases, both life satisfaction and mental well-being decrease. Therefore, it is crucial to develop practical interventions to support these parents. (c) 2024 Elsevier Inc. All rights are reserved, including those for text and data mining, AI training, and similar technologies.Article Citation - WoS: 15Citation - Scopus: 12The Use of Social Media Among Parents of Infants With Cleft Lip And/Or Palate(Elsevier Science inc, 2020) Cinar, Sevil; Boztepe, Handan; Prof, Fatma Figen OzgurPurpose: To determine the purpose of the parents of infants with cleft lip and/or palate (CLIP) for using Facebook, how they share for the audience and what kind of information they search for. Design and methods: The results of the study were analyzed using qualitative and quantitative methodologies. Data were collected for one major social media platform (Facebook) from public accounts dedicated to CL/P. The former involved thematic and word count analysis for online posts on the Facebook platform, while the latter employed descriptive statistics. Results: Facebook has a total of 8 group accounts and 7695 users in Turkey. Among the 702 posts analyzed, "requesting information" was found to be the most commonly encountered theme (55.4%). This study, it was determined that especially parents of infants with CL/P need information about surgery. The "announcement" was mentioned in only 3.3% of all posts. Our text analysis of 17.134 words mentioned in posts revealed that the most common word was surgery (6.6%). Conclusions: The current study provides a comprehensive reference to the role of social media in CL/P. Practice implications: In the near future, analysis of patients' and public knowledge and perception of surgery will be an important next step in building greater awareness of its role in the management of CL/P. (C) 2020 Elsevier Inc. All rights reserved.
