Unexpected Event: Having an Infants With Cleft Lip And/Or Palate
dc.authorid | Çınar Özbay, Sevil/0000-0002-9281-1614 | |
dc.authorwosid | Çınar Özbay, Sevil/GRJ-0811-2022 | |
dc.contributor.author | Cinar, Sevil | |
dc.contributor.author | Boztepe, Handan | |
dc.contributor.author | Ay, Ayse | |
dc.contributor.author | Boztepe, Handan | |
dc.contributor.author | Gurlen, Eda | |
dc.contributor.other | Nursing | |
dc.date.accessioned | 2024-07-05T15:39:04Z | |
dc.date.available | 2024-07-05T15:39:04Z | |
dc.date.issued | 2021 | |
dc.department | Atılım University | en_US |
dc.department-temp | [Cinar, Sevil] Artvin Coruh Univ, Fac Hlth Sci, Pediat Nursing Dept, Artvin, Turkey; [Ay, Ayse] Baskent Univ, Fac Hlth Sci, Dept Nursing, Ankara, Turkey; [Boztepe, Handan] Atilim Univ, Fac Hlth Sci, Dept Nursing, Ankara, Turkey; [Gurlen, Eda] Hacettepe Univ Ankara, Fac Educ, Dept Educ Sci Curriculum & Instruct, Ankara, Turkey | en_US |
dc.description | Çınar Özbay, Sevil/0000-0002-9281-1614 | en_US |
dc.description.abstract | This study aimed to determine the difficulties that the mothers of infants with a cleft lip and/or palate (CL/P) go through, the problems they encounter in this process, and how they perceive the support of healthcare professionals, families, and friends. The study used a phenomenological approach from qualitative research methods. The study sample included 18 mothers of 0 to 3-month-old infants with CL/P. The data were collected using socio-demographic information form and semi-structured interview form. The data obtained from the interviews were evaluated using content and thematic analysis approaches. On the basis of the interviews conducted with mothers of infants with CL/P, the following themes emerged: (a) "unexpected event: having an infant with CL/P," (b) "using social media," (c) "stigma," and (d) "uncertainty of long-term treatment." In this study, it was determined that mothers experienced shock, confusion, sadness, and disappointment in this process; therefore, they used social media to seek support from the families as well as conducted research on the disease that involved a lot of uncertainty due to long-term treatments. The present study can help healthcare professionals, who play a role in the care and treatment of infants with CL/P, to understand and know what mothers need in the preoperative period. | en_US |
dc.identifier.citation | 3 | |
dc.identifier.doi | 10.1111/cga.12398 | |
dc.identifier.endpage | 45 | en_US |
dc.identifier.issn | 0914-3505 | |
dc.identifier.issn | 1741-4520 | |
dc.identifier.issue | 2 | en_US |
dc.identifier.pmid | 33103293 | |
dc.identifier.startpage | 38 | en_US |
dc.identifier.uri | https://doi.org/10.1111/cga.12398 | |
dc.identifier.uri | https://hdl.handle.net/20.500.14411/3165 | |
dc.identifier.volume | 61 | en_US |
dc.identifier.wos | WOS:000585939200001 | |
dc.identifier.wosquality | Q4 | |
dc.language.iso | en | en_US |
dc.publisher | Wiley | en_US |
dc.relation.publicationcategory | Makale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanı | en_US |
dc.rights | info:eu-repo/semantics/closedAccess | en_US |
dc.subject | cleft lip | en_US |
dc.subject | cleft palate | en_US |
dc.subject | needs | en_US |
dc.subject | parents | en_US |
dc.subject | pediatric nursing | en_US |
dc.title | Unexpected Event: Having an Infants With Cleft Lip And/Or Palate | en_US |
dc.type | Article | en_US |
dspace.entity.type | Publication | |
relation.isAuthorOfPublication | 1f4c274e-267b-416f-bc7d-90811fc48fda | |
relation.isAuthorOfPublication.latestForDiscovery | 1f4c274e-267b-416f-bc7d-90811fc48fda | |
relation.isOrgUnitOfPublication | e886e794-386d-4406-82ee-8eecb54d2873 | |
relation.isOrgUnitOfPublication.latestForDiscovery | e886e794-386d-4406-82ee-8eecb54d2873 |