<i>"All in One: Fear, Happiness, Faith"</i> A Qualitative Study on Experiences and Needs of Turkish Mothers of Infants with Congenital Heart Disease

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Date

2023

Authors

Boztepe, Handan
Ozbay, Sevil Cinar
Boztepe, Handan
Gurlen, Eda

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Publisher

Taylor & Francis inc

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Organizational Unit
Nursing
(2018)
Atılım University Department of Nursing opened in 2018. The department is among the few in our Turkey with a program that is 100% in English. In this aspect, the department is also the first and the only one in Ankara. Nurses are some of the key players among healthcare professionals protecting the health of individuals, families and the public, and offering care in line with the principles of holistic and family-based healthcare. Prepared with respect to the changes in Turkey and the world, as well as the developments in the global health sector, course content is presented through technological and innovative methods in education. Hybrid and simulation laboratories armed with cutting-edge equipment are used for skill training as an important portion of the education for nursing. As the field most in demand by nursing and midwifery schools in Turkey, our thesis graduate program for the field Obstetrics and Gynecology shall start in 2020. Holding pedagogical formation certificates and qualifications accredited nationally, and internationally, our academic staff not only offers training in professional skills (cognitive and psychomotor skills) and foreign languages to students, but also prepares students as health professionals for the future, making use of programs such as those on social responsibility, as well as student network activities and international exchange projects.

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Abstract

Having an infant with congenital heart disease (CHD) may cause difficulties and changes in mothers' life. This study was aim to explore the experiences and needs of Turkish mothers of infants with CHD. The study was carried out with the descriptive phenomenological method from qualitative research. The study sample included 18 mothers having infants in the age range of 0 to 2 years with CHD. The data were collected using a sociodemographic data form and a semi-structured interview form. The data obtained from the interviews were evaluated using the content and thematic analysis methods. Four main themes and sub-themes emerged from the qualitative data. "Effect of getting a diagnosis" with two sub-themes (emotional changes and a protective mother-infant relationship), "All emotions in one" with two sub-themes (fearing of death and torn between fear and hope), "Influences on a mother's life" with three sub-themes (forgetting herself, getting away from siblings' lives and relations with spouse), and stressors with three sub-themes (loss of control, physical care and unfulfilled needs). The results of the study provide insight into how Turkish mothers subjectively experience life after CHD. Mothers expected healthcare professionals to support and understand their experiences and needs. Healthcare professionals need to create an environment for mothers to cope with emotional difficulties, gain knowledge and care skills, and adapt to their lives.

Description

Çınar Özbay, Sevil/0000-0002-9281-1614

Keywords

Congenital heart disease, experience, healthcare professionals, mothers, need

Turkish CoHE Thesis Center URL

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0

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Scopus Q

Q2

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Volume

46

Issue

2

Start Page

126

End Page

141

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